Patient: Edwin Rodriguez
Diagnosis: neurotrophic keratopathy
Sight Restored: 2013
Edwin Rodriguez suffers with neurotrophic keratopathy (a degenerative disease characterized by decreased corneal sensitivity and poor corneal healing). Edwin, who is now ten years old, had his first medical treatment on his eyes when he was only three. Years of medical interventions combined with ocular inflammation, blurred vision, corneal ulcers and light sensitivity understandably left him frustrated and angry at not being able to be more independent and participate in all the games that his peers played. He was also picked on. “He had a lot of difficulty doing everything, and his condition just kept getting worse,” said Denise Rivera, Edwin’s mother.
When Edwin first arrived at Boston Foundation for Sight (BFS) in 2012, it was unclear whether a trial set of BostonSight® PROSE devices could be applied to his eyes. He exhibited aggressive behavior when upset; and his mother was not sure he would let the doctors even touch his eyes. With hard work and patience, his BFS doctor, Karen Carrasquillo, OD, PhD (pictured at left with Edwin), was able to persuade Edwin to allow her to apply the first set of trial devices.
“When he got the first set of devices in, he looked at me in wonder, as if he had never seen me before,” said Denise. For the first time in his life, Edwin could see clearly.
Since returning to their home in Buffalo, NY, Edwin’s world has changed dramatically - for the better. “When we got home, he was able to watch TV, play with the other children and be more focused at school. It’s just phenomenal - PROSE has improved his life 110%.”
Dr. Carrasquillo is also very gratified with the results of Edwin’s PROSE treatment. “Edwin is a very loving wonderful child,” she said. “His case was a challenging one for many reasons. To realize that only six months after PROSE treatment all the social aspects involved in learning, his attention in school, and his overall demeanor have improved significantly is very dear and special to me. I couldn’t be happier for him and for the outcome, both visually and socially. His case highlights the wonderful impact PROSE treatment can have and I couldn’t be more thankful to be able to help patients like him.”