Boston Foundation for Sight

FOR PATIENTS


Do you have Keratoconus?

DO YOU HAVE KERATOCONUS?

What is keratoconus?
The surface of the cornea, the transparent dome-shaped front part of our eyes is their most important focusing lens. To function properly it must be exquisitely smooth and appropriately shaped. Keratoconus causes the central area of the cornea to become thinner and bulge outward thereby impairing its ability to focus.

The tendency to develop keratoconus is present at birth and is estimated to affect 1 person in 2000. In some patients the disease remains mild and they will continue to have good functional vision with glasses. In many keratoconus will progress to the point that vision is no longer adequately imporved with glasses. The disease generally affects one eye more than the other by the time it stabilizes, usually (but not always) in the third and fourth decades.

What are my options when glasses no longer provide functional vision?
Rigid (hard) gas-permeable (RGP) contact lenses can greatly improve vision of keratoconic eyes when glasses are no longer effective. This unique capability is due to the smooth layer of tears they enclose over the irregular surface of the cornea that masks its optical distortions.

Can RGP contact lenses be worn by everyone?
Traditional RGP contact lenses are designed to rest on the cornea, the most sensitive tissue of the human body. This is why the wearing comfort of these lenses is dependent on being able to minimize the pressure/friction generated as they slide over the corneal surface during each blink. The development of special keratoconus designs have increased their success in the hands of practitioners who have developed the special skills needed to maximize their effectiveness. However, even the best fitted keratoconus contact lenses may not achieve this goal, especially if the tear supply is insufficient to provide adequate lubrication.

If I can’t wear traditional RGP contact lenses, what are my other non-surgical options?
The piggyback system (wearing a traditional RGP lens over a soft contact lens), though less convenient and more awkward, can sometimes be better tolerated than an RGP contact lens alone. Another option, the hybrid lens (hard center and soft skirt) is rarely a satisfactory long-term solution. When these modalities are not tolerated, the Boston Scleral Lens Prosthetic Device (BSLPD) can be very effective.

How is the Boston Scleral Lens Prosthetic Device different?
The BSLPD avoids all contact with the sensitive cornea. Instead, it rests entirely on the sclera (the tough, relatively insensitive white tissue of the eye) and creates a pool of artificial tears over the cornea that functions as a unique liquid eye bandage. This is why the BSLPD can be worn comfortably when other types of contact lenses have failed and why it never decenters, becomes dislodged or traps foreign bodies. Moreover, even severe dry eye is not an impediment to their wearing tolerance. In fact, their liquid eye bandage has been a very successful treatment for this condition.

What are the limitations of the BSLPD?
The success rate for achieving all day wearing comfort in patients who have been unable to tolerate other contact lens options exceeds 90%. The principal limiting factor is vision. In some eyes with advanced keratoconus, the severe optical aberrations may not be fully corrected with hard contact lenses including the BSLPD. Satisfactory vision can be achieved in many cases by wearing glasses over the contact lenses that correct residual astigmatism. The indication for corneal transplant surgery in keratoconus is failure of the BSLPD to provide satisfactory vision.

How can my eyecare practitioner determine if I am a candidate for the BSLPD?
The process of custom designing the BSLPD is costly, time consuming and skill intensive. For these reasons, we accept only those patients who are significantly visually disabled and have exhausted all other non-surgical options. If your vision with traditional RGP contact lenses is adequate but their wearing tolerance is poor, it is very likely that the BSLPD will enable you to avoid surgery. On the other hand, if the vision provided by traditional RGP contact lenses is unsatisfactory, it is unlikely that our device will work for you unless it is largely due to poor lens centration. (The BSLPD is always well centered.) Your contact lens specialist can estimate the potential vision correction of our device by measuring your acuity over a larger hard contact lens designed to center adequately.

Why shouldn’t I have corneal transplant surgery instead of bothering with contact lenses?
As an invasive surgical procedure, corneal transplant surgery poses the risk of potentially serious complications even under the best circumstances. Young people are at greater risk for graft rejection. Furthermore, transplanted corneas have a limited lifespan and the younger the patient, the greater the probability that it will eventually fail and require another corneal transplant.

Because of the absence of blood vessels in the cornea, the healing process is slow and it may take a year or longer before the shape of the transplanted cornea (and effectiveness as a focusing lens) has stabilized. During this time, vision in this eye is often not functional. Even after flawless surgery, the healing process can be uneven causing the corneal graft to become warped and create abnormal astigmatism. Approximately 25% of eyes with successful corneal transplants do not achieve good quality vision with glasses and require hard contact lenses for satisfactory eyesight. Yet their distorted shape can pose a significant challenge to fitting traditional RGP contact lenses. When they are too unstable and uncomfortable to wear, the BSLPD can offer an excellent visual result.

Corneal specialists agree that it is best to exhaust all non-surgical options before undergoing corneal transplant surgery.

For more information on keratoconus, visit:

The Center for Keratoconus

The National Keratoconus Foundation (NKCF).

Frequently Asked Questions

Treatment Options for people with Keratoconus
(PDF Download)

 

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