For Patients

The Only Thing I Really Needed...

Patient: Donna Sarrafian
Diagnosis: Salzmann's Nodular Degeneration
Sight Restored: July 2006

BostonSight PROSE patient with Salzmann's Nodular Degeneration Donna Sarrafian

Donna Sarrafian suffers with a degenerative corneal disease called Salzmann’s Nodular Degeneration that affects both of her eyes.

For 35 years she struggled with worsening vision which eventually forced her to stop driving at night as she became fearful for her safety behind the wheel. As the condition progressed she had increasing difficulty driving during the day and developed very dry eyes. Eventually her vision difficulties forced to retire from her position at the University of Denver.

Donna saw any number of eye doctors over the years. She was told in 2005 that if she could not tolerate rigid gas permeable contact lenses (RGP's) that she would have to consider surgery. She wore the RGP’s for several months, which improved her visual acuity but were a daily struggle to tolerate on her sensitive corneas. Then a neighbor told Donna about PROSE treatment.

“I had had pain and suffering and night blindness and all that stuff for years” said Donna. Then, “through a neighbor, I heard about BFS. I sent them all my records by fax and within 72 hours I was in Needham seeing Dr. Lynette Johns. What a day that was! In the past, I had been given soft contact lenses of increasing strength which I did not need, hard contact lenses which were like sandpaper on my poor, scarred eyes, and told that I needed surgery to scrape the scar tissue from my cornea- and, it might not work!”

After all those years of pain and suffering, “the only thing I really needed was Boston Foundation for Sight! Can you believe it?? I have been back to Needham twice since then and all the people there have treated me with love, kindness and respect. I wish I could do more to make people aware of Boston Foundation for Sight, but the most I can do is use my voice. And that I am doing in every way possible.”

Download a PDF of this story.