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PROSE Treatment Relieves 18 Years of Eye Misery Due to Stevens Johnson Syndrome

March 20, 2023/0 Comments/in Blog Posts, Patient Stories, PROSE/by michele

Thank you to Scott K. who submitted his family’s story on our website. under the Share Your Story link at the bottom of our Patient Success Stories page.  Patient stories are incredibly important in helping others better understand the need for and the process and benefit of PROSE treatment.

“During the summer of 1997, our daughter, age 8, had an allergic reaction to bactrim, for which she was on day 9 of a 10-day regiment. We took her to a children’s hospital in Atlanta, Georgia, where she was diagnosed with Stevens Johnsons Syndrome. It was 10 days of hell for her, my wife, and me. The most severe effects of SJS were with her eyes. Light hypersensitivity, constant pain, and constant corneal ulcers all contributed to her anxiety (and ours).

For 18 years, our daughter dealt with the above. At age 26, our daughter’s eye doctor informed us about the PROSE treatment. We took her to Boston during Thanksgiving week of 2015. The staff were so supportive. The men, women, and children who we met who were being treated all had life-changing stories to tell about their journey to be at Boston. It was truly a miracle! The very first day, after being fitted with PROSE devices, my daughter was able to go outside, in the daylight, not having to wear two pairs of sunglasses! From that first day, her’s and our lives changed for the better. She had endured 18 years of misery because of her eyes, and just having the ability to be able to view the world through new eyesight was absolutely life-changing.

We are truly grateful for Boston Sight! My daughter has since married. She and her husband have a healthy baby boy! Thank you Boston Sight for changing our lives and the lives of many that we met on our first journey. We are very grateful!    – Scott K.

/wp-content/uploads/2026/05/bostonsight-logo.svg 0 0 michele /wp-content/uploads/2026/05/bostonsight-logo.svg michele2023-03-20 18:58:182023-03-20 18:58:18PROSE Treatment Relieves 18 Years of Eye Misery Due to Stevens Johnson Syndrome

PROSE Treatment Provides Relief from Higher Order Aberrations

March 8, 2023/0 Comments/in Blog Posts, Patient Stories, PROSE/by michele
“The enemy of perfection is good.”  Nate Jessiman told me about this quote from Voltaire, which an eyecare practitioner had told him during a visit. “This quote is terrible,” Nate said. “It’s a crutch for not trying to do more. I want to continue to see advances.  Good is not good enough.” Nate was diagnosed with keratoconus in his late teens. Now, 25 years later, he has his first pair of PROSE devices with SmartSight HOA® correction and can see well –not perfect – but well.  

Getting a keratoconus diagnosis 

More than 20 years ago, keratoconus wasn’t as well known. When he was first evaluated by an optometrist in his teens, the provider thought Nate was on drugs, because that seemed to be the most likely cause of ghosting, blurriness, and double vision, also known as higher-order aberrations (HOAs). Nate’s keratoconic corneas don’t have prominent bulging, but the condition is advanced enough to cause significant HOAs in his vision.  The aberrations impacted his ability to recognize faces from a minor distance. “I knew there was something wrong with my eyes. So, I went to Ocala (Florida) about 2 hours from where I lived, and spoke with a specialist.  That was when I finally got the keratoconus diagnosis.” Over the years, he saw multiple eye care practitioners. Scleral lenses really didn’t become commercially available until the last 15 years, so Nate and the eye care community were dealing with limited options.  When he finally was fit with scleral lenses, the results were mixed, including redness with lens wear and general poor tolerance. After his most recent scleral lens fit, he says, “I almost got in an accident twice on the way home and so I stopped wearing the lenses. The doctor said there was only one more tweak she could do to the lens – and the difference was barely noticeable.” After searching online for experts and watching lectures by Dr. Bita Asghari about how keratoconus patients should be managed and fit with HOA lenses, Nate sought out Dr. Asghari at the Needham PROSE Clinic. “It’s all about the HOAs with keratoconus,” said Nate. “It also depends on your level of severity. Mine is mild to moderate but the ghosting, the star bursting, the halos, the double/triple images, they’re terrible.”

PROSE Treatment Process 

In October 2022, Nate traveled to Needham for his first PROSE treatment.  He spent five days in Needham with Dr. Asghari, who first worked on the fit of the PROSE devices, which can take multiple fittings. Once the final fit was achieved, she made an HOA lens with no power or prescription to work on the aberration correction. “She put the HOA lens on and then scanned my eye with the iTrace machine aberrometer to get an accurate curve of the cornea [to determine residual HOAs].” After the scan is complete, the data is entered into BostonSight’s proprietary software to design the final HOA correcting lens. Nate says the process with Dr. Asghari was excellent. “She’s fantastic. Very thorough with the fit. We discussed the visual outcomes for each lens progression. She thought I saw better with the eighth lens, but I liked a prior pair better, and I left with the lenses I felt best with. I don’t have any irritation, and I can wear the lenses all day long. I only take them out midday to do a cleaning and a rinse and to give my eyes a rest,” he says.

Insurance and Treatment Cost 

Nate says he understands why a lot of local optometrists can only go so far. “Insurance is a big factor, because scleral lenses are not always seen as medically necessary.  They are also often billed under vision insurance, whereas a treatment like PROSE is billed as a medical treatment.” As for traveling to Needham, Nate used a program called PALS (https://palservices.org/), which provides discounts for medically related-flights.  “That was wonderful,” he said, “and it really helped.” Overall, Nate is very happy with his PROSE experience. “They are the best lenses I’ve ever worn for comfort and vision. The vision is not perfect,” Nate says, “but they are the best lenses yet.”  
https://www.bostonsight.org/wp-content/uploads/2026/06/Jessiman-Nate.jpg 1549 788 michele /wp-content/uploads/2026/05/bostonsight-logo.svg michele2023-03-08 19:41:042026-06-18 11:11:33PROSE Treatment Provides Relief from Higher Order Aberrations

BostonSight Introduces Lensy, An Educational Ambassador

March 7, 2023/0 Comments/in Press Release/by michele

Will Help Educate Pediatric Population About Scleral Lenses

Needham, Mass. –March 7, 2023 – BostonSight®, a nonprofit eye healthcare organization that advances the treatment of diseased and damaged corneas and dry eyes, officially announced that Lensy, an animated scleral lens, will be its ambassador.

Daniel C. Brocks, MD, BostonSight’s Chief Medical Officer, drew Lensy for his young children to explain his work. His 2D drawing was transformed into a graphic and has been brought to life as a 3D plush toy.

Education is a core component of BostonSight’s mission, and Lensy’s goal is to assist in educating young patients about scleral lenses and PROSE® devices. A scleral lens or PROSE device is similar to a contact lens but rests on the white of the eye (the sclera) and vaults over the cornea. A scleral lens creates a new surface over the damaged or diseased cornea, and promotes improved vision and ocular health. Lensy is a quadrant-specific scleral lens, with lens applicators, known as plungers, for arms and legs. Her engaging smile and large eyes make her an exceptionally friendly tool for working with pediatric patients.

Lensy has slowly introduced herself to the scleral lens world. She attended BostonSight’s 2021 and 2022 FitAcademy™ for Residents retreats, the International Congress of Scleral Contacts (ICSC) in 2022, and the Global Specialty Lens Symposium (GSLS) in January of this year, where she made a lot of new friends, had her eyes “scanned” at sponsor booths, and “listened” to presentations. She has been warmly received by the eye care community, who look forward to Lensy helping introduce scleral lenses to their patients, especially in pediatric settings.

With input from Anna Maria Baglieri, OD, of Boston Children’s Hospital, who fits pediatric patients with scleral lenses, and Gail Windmueller, a Certified Child Life Specialist affiliated with Boston Children’s Hospital, BostonSight developed Lensy: A Scleral Lens Story, a picture book about the basics of scleral lenses. In the story, Lensy follows her friend, Sophie Sheep, who needs scleral lenses due to extremely dry eyes.

BostonSight is running a fundraising campaign called Give (or Get!) the Gift of Lensy. A limited number of Lensy plushies and printed books are available for donation to pediatric patients at PROSE Network sites via the campaign. To Give (or Get!) the Gift of Lensy, please go to https://www.bostonsight.org/patients/eye-conditions/pediatrics/.  The book is also available for digital download at the link.

About BostonSight®
BostonSight is a nonprofit healthcare organization that advances the treatment of diseased or damaged corneas and dry eye. Our ongoing commitment to research and achieving optimal patient outcomes through innovative scleral lens design, education, and technology have saved the sight of thousands of people around the world. PROSE® is our medical treatment for the most severe or challenging ocular surface disease cases, delivered via specially trained eye care professionals at top tertiary eye centers. BostonSight SCLERAL® is our commercially available scleral lens used by optometrists worldwide. BostonSight SCLERAL has partnerships with Spectrum International in Latin America, L.V. Prasad Eye Institute in the Middle East and India, and Conóptica in Spain. Learn more at www.bostonsight.org.

 

Contact:

Michele Hart
BostonSight
(617) 669-4225
mhart@bostonsight.org

https://www.bostonsight.org/wp-content/uploads/2026/06/1.png 500 500 michele /wp-content/uploads/2026/05/bostonsight-logo.svg michele2023-03-07 14:06:392026-06-18 11:11:32BostonSight Introduces Lensy, An Educational Ambassador

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